United Kingdom Thalassaemia Society (UKTS)
The United Kingdom Thalassaemia Society (UKTS) is an association based in London, England. As a non-profit organization, UKTS aims to support individuals and families affected by thalassaemia, a genetic blood disorder. The society provides information, advice, and advocacy services to raise awareness and improve the quality of life for those living with thalassaemia. UKTS is committed to promoting research and education on thalassaemia and collaborating with other associations and organizations to achieve its goals.
Introduction to United Kingdom Thalassaemia Society (UKTS)
The United Kingdom Thalassaemia Society (UKTS) is a non-profit organization that aims to support individuals and families affected by thalassaemia. Established in 1976, the UKTS has been providing practical and emotional support to those living with thalassaemia for over four decades. What makes this organization unique is their commitment to raising awareness about thalassaemia and advocating for better treatment and care for those affected by the condition.Services & Products
The UKTS offers a range of services to support individuals and families affected by thalassaemia. These services include access to support groups, educational resources, and counselling services. They also provide financial assistance to those who need it, and advocate for better treatment and care for those living with thalassaemia. Customers can also purchase merchandise from the UKTS online store to support the organization's mission.Location
The UKTS is located in London, specifically at 19 The Broadway, N14 6PH, in the heart of Southgate. Southgate is a bustling suburban area in North London, known for its diverse range of businesses and shops. Visitors to the area can expect to find a range of restaurants, cafes, and independent shops. The nearest public transportation options to the UKTS are the Southgate Station, Arnos Grove Station, and Oakwood Station, all within a mile of the organization.Benefits
Customers should choose the UKTS because of their commitment to supporting individuals and families affected by thalassaemia. With over four decades of experience, the UKTS has built a reputation for providing practical and emotional support to those living with thalassaemia, as well as advocating for better treatment and care. By choosing the UKTS, customers can be assured that they are supporting a worthy cause and helping to raise awareness about thalassaemia.Good to know
Customers should be aware that the UKTS is a non-profit organization, which means that all proceeds from merchandise sales and donations go directly towards supporting their mission. Additionally, the UKTS is committed to protecting the privacy of their clients and adheres to strict confidentiality policies.Reviews
Customers have praised the UKTS for their compassionate and knowledgeable support, as well as their commitment to raising awareness about thalassaemia. Many have also expressed gratitude for the financial assistance and other resources provided by the organization. Overall, the UKTS has received overwhelmingly positive reviews from those who have used their services.Amenities
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membership -
networking opportunities
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resource library
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training programs
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online community
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newsletter
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advisory board
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scholarship program
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advocacy
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volunteer opportunities
FAQ
What benefits does your association provide to its members?
We provide a range of benefits to our members, including access to information and resources related to thalassaemia, emotional support, and opportunities to connect with other individuals and families affected by the condition. We also offer educational events and workshops, and advocate for the needs of our members to policymakers and healthcare providers.How do you advocate for the interests of your members?
We work closely with policymakers and healthcare providers to raise awareness about thalassaemia and the needs of our members. We also collaborate with other organizations and advocacy groups to amplify our message and engage in collective advocacy efforts. Through these efforts, we aim to ensure that the needs of our members are taken into account in policy and decision-making.What networking opportunities do you offer to members?
We offer a range of networking opportunities to our members, including support groups, social events, and online forums. These opportunities allow our members to connect with others who share their experiences and build a sense of community. We also facilitate connections between our members and healthcare providers and researchers in the field of thalassaemia.Can you provide examples of successful initiatives or projects your organization has undertaken?
One of our most successful initiatives has been our campaign to increase access to chelation therapy for individuals with thalassaemia. Through our advocacy efforts, we were able to secure funding for a new chelation therapy center in London, which has improved access to this life-saving treatment for many of our members. We have also organized successful fundraising events and educational workshops, which have helped to raise awareness about thalassaemia and support our mission.How do you ensure transparency and accountability in your operations?
We are committed to transparency and accountability in all aspects of our operations. We have a clear governance structure in place, with a board of trustees that oversees our activities and ensures that we are meeting our goals and objectives. We also provide regular updates to our members, donors, and other stakeholders, and are committed to open and honest communication about our activities and finances. Additionally, we undergo regular external audits to ensure that we are operating in compliance with legal and financial regulations.Reviews
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linden bowen
I went to help support a blood donation drive & to help & find out more about Thalassemia - a condition where the body does not have enough red blood cells. lt can cause life threatening anaemia. Severe cases need constant transfusions. I met doctors, patients & others seeking understanding & knowledge. l met friendly staff. A must place to go if you have ANY queries about this blood condition or may be starting a family & need support or reassurance. Don't forget to visit your local health centre! :0)
23-05-2023
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Spyros Antoniou
30-05-2022
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Ibrahim k vlogs
Very helpful for me thank u Ukts
30-05-2022
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Ashkaan Bandoui
30-05-2021
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Francesca Thomas
Just had a short conversation on the phone. The lady was so helpful and kind, shared information with me and also directed me to the website. I felt more comfortable speaking to her than the doctors. The only issue I have now is the the website isn't up. Otherwise they would have gotten a 5 star. But a great service overall.
30-05-2020
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Braxia Wardle
As a thalassemia sufferer, I have found that they are very supportive, to the sufferers their friends and family. They are also there for the public and health professionals, who want to find out more about this illness, by attending various places to talk about thalassemia or just giving information over the phone. There are booklets and leaflets that can be sent out to anyone that requests them. Doctors are invited to speak on what's happening in the world of thalassemia and the new advances being made, at their offices, where members are invited to attend. The society also raises money for research, into finding a cure or improving the life for people that have thalassemia. You can go on their website to find out more information.
30-05-2018
